Friday, December 19, 2014

"The Wire Zombie" - An Update on Me and My Health - AGAIN... Lol! =0)

Haha, oh man, I know I keep saying I'm going to try to start painting or drawing more consistently, but I this year has just been absolutely brutal for me. I recently had some HUGE updates on my health, so if you missed any of them, here they are: I found out that as far as people with Fibromyalgia go, not pain scale, but seriousness scale, I'm as bad as it ever can get. I also found out the same goes for my Myofascial Pain, and that I have Chronic Fatigue Syndrome that is out of this world to boot. But, on a weirdly positive note, if you can see it this way, as I'm choosing to do, I found out something today that might change everything, and that explains so very, very much as far as all of my health is concerned!!!

We did a miserable sleep study a week and a half ago - miserable for me in that they woke me up at 6am (I DO NOT DO 6AM!) and then had me sleep for 2 hours and then stay awake for 2 hours back and forth. Problem was, they couldn't even try to keep me awake - and it was as if they had never seen anyone like that before. The nurse would come in and tell me to find an activity I could do that would keep me awake for the full 2 hours, but my problem was, that's exactly WHY I was there. There is nothing I can do that CAN keep me awake. She was so perplexed, like I was some oddity, and I couldn't figure it out.

...That is, until the specialist called today. She immediately said the words I've come so accustomed to hearing, "Your test restults were absolutely astounding in a number of ways!" (Gee, aren't I the "if it can happen it will happen to you" girl? Haha!) Anyways, she went on to tell me that I have quite the intense case of obstructive sleep apnea - so much so that they weren't even able to test me for Narcolepsy because of it. Apparently it's severe enough that I'm waking up EVERY 3 MINUTES ALL NIGHT LONG!!! That's absolutely INSANE!

So if you can, I would love for some prayer, because the next few months could get a little interesting. I have to go back for at least one other sleep study to be fitted for a CPAP machine to wear at night. It's the same breathing machine poor little Levi had to wear when he was born prematurely, because his lungs weren't developed all the way. So I'm a little scared due to PTSD, to be honest, and could use prayer to calm the anxiety, and yet at the same time I'm also sooo very thankful that God is faithfully providing sooo many answers for us right now. So now we know why I have Chronic Fatigue Syndrome so badly, and potentially may be able to help fix some of my pain issues if we can get me even an ounce of Restorative Sleep.

So if you will, will you pray with me, and praise God for the answers, the validation, the new avenues to follow, and for the peace and trust in Him to give it all up to Him to handle, without anxiety or worries of my own? Thank you all so much - you have no idea how much you all mean to me - I thank God for you and your powerful prayers that have helped keep this family together each and every day! Thank you and God bless!!! =D

Oh, and just so you can get a good laugh, here you go. A chilling glimpse at the scarcely seen "Wire Zombie", and her better side, seen only on good days. Hope you get a good laugh out of this, because I'm sure this is going to bite me in the bootie sometime in the future:
I felt so terribly miserable that night, can you tell. But then again, that's how I feel just about most of the time... =P
A much happier version of me and my super hot hunk of a husband. Oh man, he's crazy gorgeous, right!?!

1 comment:

  1. I found your story by accident from Facebook links. Sorry about your health issues. Kaiser in Vacaville has started a new pain management program with Dr. STOCKWELL. The information about pain is new and proven and patients are getting better. The movement classes are based on Tai Chi but there is no worshiping Buddah. In fact the PM psychologist, Les Aria, is a Christian and explains that for himself, he is being grateful to God when he does the exercises. J. Dennis RN


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